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Alzheimer’s disease is a progressively debilitating condition that can leave family members feeling overwhelmed and unsure of how to provide the best care for their loved ones. When the time comes to consider long-term care, having a roadmap to navigate the emotional and practical aspects can be reassuring. Understanding the challenges associated with memory loss and cognitive decline, as well as the evolving needs of those affected, is essential in providing compassionate and effective care.
Here’s a step-by-step guide to help find the right long-term care for your loved one:
Alzheimer’s affects people differently, so specific needs may vary. Consistent monitoring, medication management, help with ADLs (Activities of Daily Living), specialized dementia care — all should be considered. What is memory care? Talk to your loved one’s physician to understand what’s required for their unique situation.
Long-term care options can range from in-home care services, where care professionals come to the home, to memory care facilities and nursing homes. The Alzheimer’s Association offers resources that can help you understand the differences and benefits of each type depending on the stage of Alzheimer’s [1].
Websites like the National Institute on Aging offer comprehensive resources for finding long-term care providers and evaluating quality [2]. Local Alzheimer’s organizations and support groups can also be great sources of information and recommendations.
While online reviews and recommendations are beneficial, there’s something to be said for seeing the environment first-hand. Make sure you visit in person and check things like room cleanliness, safety measures, and observe how staff interact with residents.
Long-term care comes with significant cost implications. It is important to have an honest talk about the budget and consider available resources, such as long-term care insurance, veterans’ benefits, Medicaid, or personal savings.
Whenever possible, the person with dementia should be included in the decision-making process. Let them voice their preferences and concerns, get a feel for the facility, and meet the personnel. These can all be decisive factors in enhancing their quality of life and ensuring they are happy and comfortable.
Moving a loved one into long-term care is an emotional step. Setting realistic expectations and enlisting the help of a social worker or counselor to help manage the emotional transition can be beneficial.
Just as their cognitive impairment evolves, so should the nursing care plan. Regular check-ins and reassessments ensure your loved one’s needs are met and their mental status is monitored as the disease progresses.
The journey to finding long-term care for a family member with Alzheimer’s requires research, time, and effective communication among family members – but with the right guidance, it can be made a lot easier. Always remember that you are not alone through this journey and countless resources and supportive communities are there to help you.
References:
[1] Alzheimer’s Association. (n.d.). Residential Care. www.alz.org/help-support/caregiving/care-options/residential-care
[2] National Institute on Aging. (n.d.). Long-Term Care. www.nia.nih.gov/health/what-long-term-care